It seems like we welcomed the New Year of 2018 just yesterday, where has this year gone? We officially celebrated every 1st holiday with McKenzie, we have cried over hospital beds, we celebrated McKenzie's first birthday, we have struggled to learn how to help McKenzie's sensory, we celebrated McKenzie sitting up on her own, we… Continue reading Goodbye 2018, Hello 2019!
In just 14 months, our daughter has accumulated 12 specialty doctors, 3 therapy interventionist, 24 active medical conditions, 3 surgeries (one being open heart), 8 hospital admissions, 34 illnesses, and both cognitive and developmental delays. My day is consumed with medical appointments and/or therapies, my nights are consumed with research and failed attempts at maintaining… Continue reading A Medical Mystery.
“The parent knows best and the parent knows first” - David Grossman It starts with the smallest symptom and within seconds, you’re consumed with adrenaline and beginning your mental-check list. I have become all too familiar with the fight or flight response, I am a special needs mom; this is my life. When I started… Continue reading No one knows the days that almost crushed you or the fear that almost froze you.
Of all the challenges we've experienced after becoming new mom's, one that has been the most complicated is dealing with extended family. Of course, our families mean the best, but that doesn't always mean its what's best. So, we set boundaries - we knew it would be difficult to convey, but we also knew that it… Continue reading Boundaries –
"I should have woken up this morning, my hair perfect and my babies outfit layed out. I should have had dinner ready promptly at five for my wife, who worked all day. I should have had my daily chores done and errands completed by noon, so I could spend the rest of the day playing… Continue reading A subconscious guilt;
It’s in the eye of the storm when the power runs out and you’re sitting in silence, wondering and waiting for what’s to come. It’s the silence that begins to make you think about life and the world we live in. Just weeks ago we had riots and hate throughout America, and yet, when we… Continue reading Hurricane Matthew
Last night, with hope in my heart, I said my prayers and snuggled next to my wife and puppy. The morning came quick and I immediately grabbed my phone, hoping for an email from the doctor; and just as I expected, there was one. “I’m sorry, your test was negative” and the little hope… Continue reading So close, but still too far.