hope · McKenzie · McKenzie's Medical · Medical · Mom Life · The beginning · The Pregnancy

Awareness

" Down Syndrome.... What the heck is that? " When I was 16 weeks pregnant, the doctor called to tell me my blood results showed 1 and 7 chances of my baby being born with Down Syndrome - the phone call was short, but it quickly brought me to my knees. I spent weeks searching… Continue reading Awareness

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McKenzie's Medical · Medical · Mom Life · Uncategorized

A Medical Mystery.

  In just 14 months, our daughter has accumulated 12 specialty doctors, 3 therapy interventionist, 24 active medical conditions, 3 surgeries (one being open heart), 8 hospital admissions, 34 illnesses, and both cognitive and developmental delays. My day is consumed with medical appointments and/or therapies, my nights are consumed with research and failed attempts at maintaining… Continue reading A Medical Mystery.

Medical · Mom Life · Uncategorized

No one knows the days that almost crushed you or the fear that almost froze you.

“The parent knows best and the parent knows first” - David Grossman It starts with the smallest symptom and within seconds, you’re consumed with adrenaline and beginning your mental-check list. I have become all too familiar with the fight or flight response, I am a special needs mom; this is my life. When I started… Continue reading No one knows the days that almost crushed you or the fear that almost froze you.

Holidays! · McKenzie · Mom Life

It didn’t go as planned but, I couldn’t have planned it better.

Having a child with special needs, medical needs and ongoing illnesses has caused me to innocently forgot the big-little things, such as holidays and birthdays. I remember when I was pregnant, I loved looking at halloween costumes - imagining our babies first halloween dressed as a cute animal or tiny pumpkin, but McKenzie was recovering… Continue reading It didn’t go as planned but, I couldn’t have planned it better.