" Down Syndrome.... What the heck is that? " When I was 16 weeks pregnant, the doctor called to tell me my blood results showed 1 and 7 chances of my baby being born with Down Syndrome - the phone call was short, but it quickly brought me to my knees. I spent weeks searching… Continue reading Awareness
In just 14 months, our daughter has accumulated 12 specialty doctors, 3 therapy interventionist, 24 active medical conditions, 3 surgeries (one being open heart), 8 hospital admissions, 34 illnesses, and both cognitive and developmental delays. My day is consumed with medical appointments and/or therapies, my nights are consumed with research and failed attempts at maintaining… Continue reading A Medical Mystery.
I don't work, but I never get a day off. The morning comes quick, before I know it I'm struggling out of bed to greet a bright-eye'd almost 14 month old. The day begins with kisses, morning prep, feeding bags, medication and of course, paw patrol. - This seems pretty decent, right? well, that's because… Continue reading The rambles of a SAHM.
“The parent knows best and the parent knows first” - David Grossman It starts with the smallest symptom and within seconds, you’re consumed with adrenaline and beginning your mental-check list. I have become all too familiar with the fight or flight response, I am a special needs mom; this is my life. When I started… Continue reading No one knows the days that almost crushed you or the fear that almost froze you.
Having a child with special needs, medical needs and ongoing illnesses has caused me to innocently forgot the big-little things, such as holidays and birthdays. I remember when I was pregnant, I loved looking at halloween costumes - imagining our babies first halloween dressed as a cute animal or tiny pumpkin, but McKenzie was recovering… Continue reading It didn’t go as planned but, I couldn’t have planned it better.
I recently switched my blog to WordPress - while doing so, I briefly reviewed previous posts from the beginning of Our Journey. I have to admit, I never imagined we would be where we are today but I am so thankful we are. Identifying as an individual seemed so hard! Enduring the teen years, understanding… Continue reading Identifying as a… Mom.
http://www.Facebook.com/Nothingdownaboutkenzie In November of 2017, I created an awareness page in McKenzie's name. I have never been an outspoken -" in your face with my beliefs " type of person, but after watching McKenzie endure so much within the first months of life - I started reflecting the fear and ignorance I was once consumed… Continue reading Nothing Down about Kenzie