I apologize for the limited updates, 2019 has hit hard. The year began with December’s admission results, it turns out McKenzie has pancreatic insufficiency which has caused a need for multiple other tests. After learning this, we got with Palliative care and sat down for a family meeting with McKenzie’s top involved doctors. We talked,… Continue reading A tired mom fights the hardest.
" Down Syndrome.... What the heck is that? " When I was 16 weeks pregnant, the doctor called to tell me my blood results showed 1 and 7 chances of my baby being born with Down Syndrome - the phone call was short, but it quickly brought me to my knees. I spent weeks searching… Continue reading Awareness
In just 14 months, our daughter has accumulated 12 specialty doctors, 3 therapy interventionist, 24 active medical conditions, 3 surgeries (one being open heart), 8 hospital admissions, 34 illnesses, and both cognitive and developmental delays. My day is consumed with medical appointments and/or therapies, my nights are consumed with research and failed attempts at maintaining… Continue reading A Medical Mystery.