It seems like we welcomed the New Year of 2018 just yesterday, where has this year gone? We officially celebrated every 1st holiday with McKenzie, we have cried over hospital beds, we celebrated McKenzie's first birthday, we have struggled to learn how to help McKenzie's sensory, we celebrated McKenzie sitting up on her own, we… Continue reading Goodbye 2018, Hello 2019!
" Down Syndrome.... What the heck is that? " When I was 16 weeks pregnant, the doctor called to tell me my blood results showed 1 and 7 chances of my baby being born with Down Syndrome - the phone call was short, but it quickly brought me to my knees. I spent weeks searching… Continue reading Awareness
Having a child with special needs, medical needs and ongoing illnesses has caused me to innocently forgot the big-little things, such as holidays and birthdays. I remember when I was pregnant, I loved looking at halloween costumes - imagining our babies first halloween dressed as a cute animal or tiny pumpkin, but McKenzie was recovering… Continue reading It didn’t go as planned but, I couldn’t have planned it better.
♥ Happy Birthday ♥ Dear McKenzie, It feels like it was just yesterday your little heart stopped and we were rushed for an emergency c-section. You were born within minutes and I will never forget the first time I held you, you were so tiny with beautiful, curious eyes. I hope I've done ok so far,… Continue reading Dear Daughter, on your First Birthday.
http://www.Facebook.com/Nothingdownaboutkenzie In November of 2017, I created an awareness page in McKenzie's name. I have never been an outspoken -" in your face with my beliefs " type of person, but after watching McKenzie endure so much within the first months of life - I started reflecting the fear and ignorance I was once consumed… Continue reading Nothing Down about Kenzie
Due to McKenzie's heart condition and low energy levels, at five weeks old she continued to struggle with weight gain and received a G-Tube. The initial introduction of McKenzie needing a G-Tube was hard for me to digest. I never imagined feeding my baby through a tube - but the doctors insisted it was the… Continue reading The Mickey Placement.
We were aware McKenzie would face developmental and intellectual delays. So, we immediately took action in setting up occupational therapy and purchasing all the tools we (thought) would need to assist in her milestone accomplishments. The truth is, we found our expectations of milestones differed greatly from what we faced. Our celebrations weren't because she… Continue reading We will forever cherish every milestone.
Today I realized that lately I am guilty of focusing on McKenzie's health more than I have focused on who McKenzie is. I realized that I haven't properly introduced McKenzie to the world yet; so, meet McKenzie. McKenzie has a few nick-names; Kenzie and Kenzie-Cole. She has shown a great deal of independence and while she… Continue reading Meet, McKenzie.
After a week in Orlando, Nikki had to leave back to Daytona so she could return to work. I was unreasonably swollen and suffering from baby blues. The team in McKenzie's NICU pushed her to the 11th floor so I could stay with her. This was the first time Nikki and I had ever spent… Continue reading Bringing McKenzie home
For all the things my hands have held, the best by far is you. When I was pregnant we toured the NICU, we wanted to have as much knowledge as we could to prepare for her stay; but the truth is – there was no amount of planning or knowledge that could have prepared… Continue reading The world of ICU and NICU’s