McKenzie's Medical

A tired mom fights the hardest.

I apologize for the limited updates, 2019 has hit hard. The year began with December’s admission results, it turns out McKenzie has pancreatic insufficiency which has caused a need for multiple other tests. After learning this, we got with Palliative care and sat down for a family meeting with McKenzie’s top involved doctors. We talked,… Continue reading A tired mom fights the hardest.

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McKenzie · Uncategorized

Goodbye 2018, Hello 2019!

It seems like we welcomed the New Year of 2018 just yesterday, where has this year gone? We officially celebrated every 1st holiday with McKenzie, we have cried over hospital beds, we celebrated McKenzie's first birthday, we have struggled to learn how to help McKenzie's sensory, we celebrated McKenzie sitting up on her own, we… Continue reading Goodbye 2018, Hello 2019!

McKenzie's Medical · Medical · Mom Life · Uncategorized

A Medical Mystery.

  In just 14 months, our daughter has accumulated 12 specialty doctors, 3 therapy interventionist, 24 active medical conditions, 3 surgeries (one being open heart), 8 hospital admissions, 34 illnesses, and both cognitive and developmental delays. My day is consumed with medical appointments and/or therapies, my nights are consumed with research and failed attempts at maintaining… Continue reading A Medical Mystery.

Medical · Mom Life · Uncategorized

No one knows the days that almost crushed you or the fear that almost froze you.

“The parent knows best and the parent knows first” - David Grossman It starts with the smallest symptom and within seconds, you’re consumed with adrenaline and beginning your mental-check list. I have become all too familiar with the fight or flight response, I am a special needs mom; this is my life. When I started… Continue reading No one knows the days that almost crushed you or the fear that almost froze you.

Holidays! · McKenzie · Mom Life

It didn’t go as planned but, I couldn’t have planned it better.

Having a child with special needs, medical needs and ongoing illnesses has caused me to innocently forgot the big-little things, such as holidays and birthdays. I remember when I was pregnant, I loved looking at halloween costumes - imagining our babies first halloween dressed as a cute animal or tiny pumpkin, but McKenzie was recovering… Continue reading It didn’t go as planned but, I couldn’t have planned it better.